Home

Advertisement

Calming down

  • Mar. 3rd, 2008 at 8:09 PM

I think that my life is calming down a bit. Since we got back from Shade of Hope, life has been better but still a little busy going to appointments, trying to catch up on work we missed while we were gone from our job, and trying to re-arrange our priorities a lot. We have been seeing new people, trying out therapists, going to different doctors and appointments, so we've been gone every day until after dinner and sometimes even later.
But that should all be ending after tomorrow. We have art therapy after work, and then, things should start chilling out a bit.
We have been following our meal plan. We are doing our daily affirmations. We are reading our Bible. We are practicing mindfulness. Doing meditation. Praying. Developing a closer relationship with God so that He is our main source of help and our main priority. We are learning how to take care of ourselves. We got some REALLY good smelling bubble bath. We are getting our medications worked out. We're figuring out when to reach out to people, when to try harder to handle things on our own inside. We're figuring out when to take some time to ourselves and re-charging our own batteries before we get back to helping others. We are staying in the moment more and being there for the students in our class. There isn't any arguing inside. That has been so refreshingly strange but so nice.
We just thank God for this calming down phase that He is finally allowing us after 30 years of chaos and confusing. Things are still really hard but compared to how they used to be, we are just doing so much better inside.


Shades of Hope

  • Mar. 1st, 2008 at 11:42 PM
dream
Well so much has changed in the past 2 months that I wouldn't even know where to begin explaining, so I'm not really even going to try....
Long story short:
Lost hope. Lost weight. 90 pounds. 
Decided that wasn't going to work for me.
Started Art Therapy.
Shades of Hope treatment center in Buffalo Gap. 
Miracles happened.
Home now. Different person.
Made friends. New doors opening up.
Getting healthy.
That about sums it up.

So much has changed

  • Mar. 1st, 2008 at 11:41 PM
superpowers

I'm ready to say goodbye to my eating disorder I've had for over 20 years. This is the 1st time I've ever felt this way. The week at Shades of Hope made such a difference inside of us. And before we left--especially the middle and end of January-- things were just SO bad. That was the bottom of everything. I never want to get that bad again. I never want my weight to get that low again. I never want to feel that horrible again. There were no lower sizes to wear at the stores. There was nothing less to eat than nothing. Then we went to Shades determined to work as hard as we could and do everything we could to get better. We ate everything every day. And we didn't gain a pound. We found out we could eat and not gain weight. Last night I went to see my nutritionist and got started on a meal plan. I told her that I'm willing to eat and work the meal plan and everything.
She doesn't have to fight with us anymore.
We're not fighting inside anymore either.
At Shades we did this psychodrama where someone was whispering all these eating disorder thoughts and words into my ear. I kept telling it to go away, but they kept coming back even after I pushed it away. So I just got up after a second and walked across the room and left it behind. The therapists said out of everyone there, they'd never seen anyone just get up and walk away from their eating disorder like that. I felt strong.
I know I can do it in real life too.
I've been eating good this week and I'm proud of that.
It feels like each pound gained back will be an accomplishment. It's still going to be hard though. I know that eating disorder will still give me a hard time and try to make me really scared and worried and panicky. I think I might have times of relapses and times where I want to give in. But I don't have to give in for good.
But this is what I know now: that wasn't a life I had. That was death. And I don't want death. I don't want to be told I look like a walking skeleton anymore.
I want to look and feel healthy.
So I'm saying goodbye to that anorexia that was eating away my body and my brain and my life. I am going to be healthy instead. I don't need the eating disorder to speak for me anymore. I can use my voice, and not my body, to talk and tell people what I want and need.
Finally.

 

Jan. 17th, 2008

  • 10:20 PM
dream
 Since Sharon left me all i care about is...nothing. dying.
she said she wouldn't ever do it, but she did. She dumped me last Thursday 1/10.
she wanted my husband there to support me if i freaked out
which i did
i want to kill myself-- NOW
she promised to never do it but she did
i hate everyone
i feel like such a fool
she abandoned us
we can't contact her anymore, unless its for 1 transition session with a new T.
i give up
she said she is out of ideas to help us, she's failed
SAID she cares. like fuck she does
gave a list of 4 therapist
and a list of all my recent failures the past year
why she cant see me anymroe
 i BEGGED her. is there ANYTHING i can do to have you keep me?
She said "No. I'm done."
weight is now 94. don't care.

nothing is real anymore. life is all pain. everything is pain.


just so much in shock. moving in slow motion. i feel like molasses.
time is going by so slow.
trying hard to find some comfort, or some good, out of this.
just hard/
The inside kids, especially Mae, are wailing/screaming/crying SO HARD, constantly.
Still haven't slept, not even my sleeping pills allow us to sleep.


i am faking a smile everywhere so people will not realize how suicidal i am

AGH! Another trip.

  • Dec. 30th, 2007 at 11:46 PM
dream
 I was one of the adventurers who was stranded in an airport due to the weather. To keep my privacy I don't feel like I can share the whole story here, but, I was helped by someone who can only be described as an angel who took over when I was very lonely, lost, upset, and feeling hopeless who not only got me booked on a flight for the next day but also slipped money into my hand before she mysteriously disappeared. I can't explain how much of an impression she made on me and how grateful I was, because we were in this great big airport, very alone, the inside kids were upset and had been chattering away for hours, everyone else was exhausted, I didn't know what else to do, and I'm only 17 and should have been accompanied by an adult in the 1st place, and I had absolutely NO idea what to do when stranded in an airport. One kind person renewed my faith in the human race for just a little while longer.
  But eventually we did make it to our destination and had a very good Christmas with family. Its hard for me to open presents-- Caroline handles it so much better. I'd rather watch other people. The kids got dolls and books about dogs, so they were ecstatic. Mae thinks that Santa must have snuck her presents into my sister's house because she has a chimney. We played dolls/ cards/ coloring/ painting/ dollhouse/ kitchen/ you name it with my 5 year old niece who is more like us than she needs to be. I'm already worried about her-- she's so smart, so sensitive, so curious, so EVERYTHING. And yet I don't worry because she has my sister for a mom, and my sister takes such good care of her. My niece will have such a different life than we did. I didn't get to spend much time with my sister. Her life is just too busy, too stressful. She has too many demands on her and no help, and I feel helpess to make anything better for her. I can't do anything except when I'm there to do her dishes and her laundry--it's nothing. Our therapist is always telling Caroline-- "she's a grown up now-- let her make her own decisions." But grown up or not, she's our little sister, and when it comes to her, we're protective like a mother tiger. But we did get one night to hang out together and have fun, laugh at stupid videos on YouTube, and there's no one else except my sister that I'd do THAT with.
Its always hard to be there on vacation. Everyone inside has a different idea of what we need to do while we're there. Different inside kids want to hang out solely with "mommy and daddy" and watch late-night tv and have everything be just like things were back in 1974 when it was just the 3 of us. I miss the days when it was just me and my sister hanging out with each other, before I had a driver's license or a boyfriend and the only people we really had to play with was each other.  Others want to just play with my sister's kids-- because that's who they can relate to and they don't want to be around grown ups. And still others want to just go back to the airport, get back home, and return to the dquietness of our daily routine which includes every Thursday at therapy because the only place they feel safe is on our therapist's office, and our husband who needs us at home too. Then someone else has to figure out how to make everyone happy-- everyone in the family, and everyone inside. This time it was my job, and I know I did a lousy job at it. The kids didn't get to play as much as they wanted to, I didn't get to do enough with my sister, I think I didn't spend enough time with my parents, and I only got to see my gramma one time. Other people I wanted desperately to see didn't show up for the holidays at all , and still others I looked forward to seeing had to work the entire week. I wanted to freeze-frame every second that I had with each person, and make it last so I could remember it. I tried to memorize the feeling of my nephew's skin, my niece's hair, the sound of their laughter. I tried to discretely stare at my parents while they fell asleep watching tv so I could still remember the memory when I'm old. I tried to memorize how my sister strokes her daughter's hair.
Saying goodbye to them tears me apart. I wonder how many new people we made inside each time we had to say goodbye to someone to try to find someone who could handle it? I feel so terrible leaving them, like I'm abandoning everyone on the front door step of an orphanage or something. I wish I didn't have to leave. I wish I could stay. We'd die if we stayed there though. There's too much there where we used to live-- this week we had so much to deal with, bad memories and flashbacks, too much old stuff brought up, but those are for another entry. We have to set a boundary SOMEWHERE-- if they want me ALIVE, then we have to live far apart, and that's all there is too it.
 

disappear

  • Nov. 9th, 2007 at 2:54 PM
dream

im going to try to disappear off the planet

I screwed up so bad & I hate myself

  • Nov. 8th, 2007 at 11:14 PM
mouth
i'm so scared that my therapist hates me. she called 911 on me tonight. couldnt stop dissociating. she found mae and mindy out front. i can't remember what they said. but it was something about waiting for mom to pick them up, i'm not sure why. it was late and dark, and i'm so scared of the dark. why the heck would they be out in the dark waiting for mom. i don't know for sure.  So T didn't want to deal with them, or I dont know, too tired or too sick of us or who knows what. She called 911. The flashing lights of the fire truck and the siren on the ambulence were so scary, everyone inside was so freaked out. She was telling them I think what hospital to take me too. I could hear but couldn't stop spacing out. People talking all around me but not too me. Talking at me like I was an idiot.  I remember being in my car crying because i just know everyone's going to hate me now. How could it have come this. Everyone inside is so humiliated and embarassed. T had to call our husband and have him drive all the way out there to pick us up.  Husband talked to me on the phone and got mae to agree to be good and go away. So I got to come back out. Still in huge dang trouble :(   
We had to wait a long time. I'm so spcaed out and headachey. At least my therapist isn't going to charge me for the extra time of hers we took up while we waited. Caroline and I talked to her about school, our niece who is a genius. I apologized a million times. She SAYS I didn't do anything wrong. Really? Her face didn't say so. Sometimes though when our T is scared she looks mad. . .. i dont know. She looked pissed off a lot of the time. I dont know. They were talking about sending me to the psyche ward if hubby didn't come pick us up. At least we didn't have to go there. 
I don't want to ever get out of bed again. I am so humiliated. Hubby tried to be helpful.  Tried to tell me there's nothing to be embarassed about. BUt I think that, unless you've HAD 911 called on you, and had to go through that total humiliation, and asked the stupid global orientation questions, and had them talk to you like you're an idiot,  and have your own therapist have someone come out to help HER and make sure SHE'S okay, while you sit in your car by yourself and cry, and your therapist leaves you alone to do so and looks like she can't stand you now, then I DONT think you quite GET IT.
This was about the last thing I needed right now, with so much stress going on at work and inside already. :( 
i honestly don't know what to do.
What if she wants to get rid of me now? What if she uses this for ammunition against me, under the guise of "helping?"
There's so much I want to talk to her about, but I'm too humiliated and embarassed to. I'm afraid to e-mail her or leave a message or antyhing.   I'm too scared. 
I'm afraid to talk to her anymore, even though I need to so bad.
She probably wants to get away from me anyway.  She probably really needs a break from me.
I need a break from me too. I want to just get away and never be seen again.

INSANE

  • Nov. 7th, 2007 at 6:15 PM
dream

i am not kidding
i cannot get a break from someone/something who CONSTANTLY NEEDS ME/ HAS TO HAVE my undivided attention. i can't do it anymore. i CANT. i get NO time to myself. no downtime at ALL. I CANT DO IT. today was so fucking frustrating at work. and tomorrow i have a substitute for my assistant, who knows nothing about autism. FUCK. and I have 2 more parent conferences during the day how the hell am i supposed to manage that?
at the staff meeting it was on suicide and child abuse, so jo is about to lose her mind with flashbacks. i tried to calm everyone down by making a nice fire. it just went out. the dogs are making me nuts.
i tell my husband, i need some time away.
he says, FIRST WE AHVE TO CUT THE DOGS' NAILS.

SURE. Lets see what will kill me first. my blood pressure, or me banging my head into the wall. as soon as i get to the shower, i  want to get the razor blades to get some of this pressure out. i'm so fuckign SERIOUS. i'm starting to understand why jo finds cutting comforting. its the only escape she has.

i can't do this ANYMORE.  I HAVE to get some time to myself. but no one will leave me the hell alone. i keep getting more and more SEVERE kids in my class. and no help yet. but they keep pulling my aide out for meetings and stupid stuff.  they "might" get me another aide. "Maybe."

fuck all this. i'm exhausted and its only november. i don't usually get like this til march.

I'm so lonely.

  • Nov. 4th, 2007 at 7:02 PM
dream
I saw this on LJ Secret the other night. What if Katie was the one that put it up?
 
i wish i wasn't such a horrible bad person. i wish i was good. i wish everyone didn't hate me so much.


everything inside is so yucky and i'm so tired of being fat, ugly, and alone. i found more razor blades today. its the only thing that has made me feel happy all week.

 

i just want to disappear.  nobody would notice anyway.

Lost all my stuff

  • Oct. 31st, 2007 at 5:55 PM
teaching
My computer just went berzerk on my today. It crashed, bigtime. I lost everything. EVERYTHING. All my paperwork. All my school stuff. All our artwork (TONS of it-- maybe hundreds of things) all our pictures, even family pictures. All our writing, all our journal entries. Our passwords for all the sites we visit (well, USED to visit now). I am losing my mind. It was working fine last night. Today turned the computer on and everything zapped out. I spent 2 hours looking for the recovery disk, an hour on the phone getting transferred through departments til someone could finally helped me, and his way of helping was to re-do my whole computer. EVERYTHING IS GONE. I am so discouraged. Everything is gone. There's nothing left. And So now its trying to re-setup, and I can't think well enough to follow the directions on the screen. My brain is so fried. ALl the paper work I had to do today, trying to get caught up, a meeting moved from next week to today, so "Mrs Pointer I need you to get this paperwork done this morning instead of next week", 1 of my autistic kids had a huge meltdown on me today too. I can't think. So I was planning to cme home and finally get some time to do what we wanted to do. We SO NEEDED some time off. BUt then we spent the whole afternoon trying to figure out the computer. I can't believe I made us lose all of Jo's artwork and we have to reinstall EVERY program. EVERYTHING. And... all my documents. There's no way everything can be put back.
I dont know what to do.
God I wish I had someone to help me, just a little bit. Someone to even just help set this computer back up. I asked tom, but he says, "I dont know what to do, its your thing." Wow, thanks. Never mind that I am sitting here about to cry.
There's too much. And with this halloween going on... i am trying hard to get everyont to hang in there for 2 more days. Jo wants to cut her wrists, and Mae wants to make a fire and burn her hands, or at least burn her hands on the candles. This hypervigilance to make sure nothing happens keeps giving me a headache.
It feels like I'm doing everything wrong and behind in everything. I just can't get caught up. I feel like I'm failing everything and that no one is listening to me. It keeps getting more and more difficult to hold back tears. Its like if I could just get some HELP. But there isn't anyone to help me and yes i do ask at times. There just isn't anyone. I just need a break. I'm so tired. This year is such a hard year. I don't know what to do anymore. I can't even catch my breath anymore and I want to give up. only i know that's not an option. God I wish I could just get a break here.
i'm really sorry for complaining. i can't believe i lost everything on my computer. OMG i just realized i just lost even all that curriculum I wrote this summer... and 1 entire year of lesson plans. oh my god. i feel like giving up.

Oct. 29th, 2007

  • 6:06 PM
dream
why is there a stupid witch on a broom with a big moon automatically on my LJ home page?
why can't we get away from halloween?
i want to cut my wrists.
God make this Halloween stuff GO AWAY. Its everywhere.
Two more days. Two more days.

Dear God Help us ALL

  • Oct. 27th, 2007 at 10:05 PM
dream
http://www.mandjshow.com/videos/multiple-personality-disorder/


Oh the POOR DOCTOR. How freaking BRAVE OF HIM to work with someone with DID. What a HERO.
I'm not going to list his webpage or his book, because both are completely pathetically self-absorbed and all about how HE SUFFERED through the therapy with his poor, awful patient with DID and how difficult it was for..um... HIM. the THERAPIST.

OH DEAR GOD.
i want to puke on that guy's shoes

oh that and the over-reaction of the hosts, SO LIKE OMG YOU LIKE LOSE TIME AND IMAGINE IF YOU WOKE UP IN THE MORNING AND YOU DIDNT REMEMBER GOING TO BED AND IF YOU WERE IN THE STORE AND SOMEONE CALLED YOU BY ANOTHER NAME and TOLD YOU ABOUT FRIDAY NIGHT BUT YOU DONT REMEMBER FRIDAY NIGHT!! OMG! OMG! OMG!
how about those of us who just want to get the dishes done, and are over all the drama of us, and just go to work and do the laundry and collect our paychecks and take the dogs for walks? come on, people. *gripe* *gripe*
I want to get on one of those shows, but behind a black curtain or something.

embarassing. totally embarassing. THATS the kind of thing that makes me want to deny being multiple

Oct. 25th, 2007

  • 8:30 PM
dream





i need sophie to come home. please.
cant take these anniversary days. need to talk so much. we got to talk to sharon which helped some. we wanted to take our pictures of sophie, our scrapbooks. we have videos of her, but, so many of the videos have a certain person in them that we cannot stand to see anymore. so we cant watch the videos.

my heart hurts and mae is crying "LEAVE ME ALONE!!"

secrets that are really ours

  • Oct. 25th, 2007 at 8:24 PM
dream
i am not this brave. but i wish. jo







looking like this is safer.
I HATE OCTOBER! AND I HATE MY BODY!

OVERWHELMED!!

  • Oct. 24th, 2007 at 8:31 PM
dream
my body makes me so grossed out and mad!!! i am SURE i am gaining weight. i can just TELL. its those peanut butter cups. i have been having 1 every day. they're making me even more obese. I HATE MY BODY!!! i want to cut all the fat off. its just that i look so bad and my stomach sticks out. it is so much worse this week. I AM SO FAT!!! jo


Its Caroline. work is way overwhelming. yet another child with autism coming on 2 weeks. I told the diagnostician that my room is now CLOSED. and we got another boy in our class today. With this many kids just in October... good God how many am I going to have by the end of the year? It scares me. can't get caught up with work, there isn't enough time in the day, something always comes up, another meeting, another round of paperwork, SOMETHING. My website stuff was supposed to be up YESTERDAY and I'm not even close to being done. The server was down. I didn't have time anyway to get to it. I have to do report cards. Two girls to mentor and work with every week. I have parent conferences. I have literacy night to plan for. I have medicaid paperwork to fill out for the kids. More things to finish in my classroom that I haven't gotten done from the beginning of the year yet. people ask ME what I do for stuff, and they decide THATS what the right thing to do must be. Who made me the expert? why am i the be all and end all of special ed? what if I'm wrong? why does everyone look to me for answers? i think i make it quite clear that i don't know everything. Geesh i can't even make the inside kids behave. I think i just get lucky with classes of kids. I get about 10 minutes of free time a day-- that's to grab some lunch real quick. Right now I am SO FAR BEHIND on so many things. And that is with working on things after school, before school, during lunch, during my planning period, at night, and on weekends for several hours. I've got way too much on my shoulders this year. Would you believe there is a LOT that I say no to? And I'm not even doing yearbook this year!!

Whine, whine whine. By the way, I hate my body sometimes too. Jo doesn't have the market on that.
Tomorrow is Sophie day and every time we get a moment to think, M starts flapping her hands and rocking back and forth and talking in half-said sentences about odd things.
Sophie was my best friend too.
We get so worked up at night lately that we can't calm down and need extra sleeping pills. Argh.

On the bright side (because I am always supposed to be bright and sunny and wonderful) the weather has finally cooled off and we can finally play outside for recess without fear of getting heatstroke. Its also nice for going for walks, should one ever get the time to do such a thing.

the hardest week is here

  • Oct. 21st, 2007 at 2:39 PM
dream

i should have never let go of her the day this picture was taken... 
i should haveheld on forever, and never stopped hugging her. 
it still feels like it all must have been some big mistake. Its been
6 years since she died, and I still wait for my best friend 
to come home.


 

Better off than these people, at least....

  • Oct. 18th, 2007 at 9:44 PM
dream

We have had a really, really hard week ... but at least we are better off than THESE people...

These are sentences typed (wrongly) by Medical secretaries

1. The patient has no previous history of suicides.
2. Patient has left white blood cells at another hospital.
3. Patient's medical history has been remarkably insignificant with only a 40 pound weight gain in the past three days.
4. She has no rigors or shaking chills, but her husband states she was very hot in bed last night.
5. Patient has chest pain if she lies on her left side for over a year.
6. On the second day the knee was better and on the third day it disappeared.
7. The patient is tearful and crying constantly. She also appears to be depressed.
8. The patient has been depressed since she began seeing me in 1993.
9. Discharge status: Alive, but without my permission.
10. Healthy appearing decrepit 69-year old male, mentally alert, but forgetful.
11. Patient had waffles for breakfast and anorexia for lunch.
12. She is numb from her toes down.
13. While in ER, she was examined, x-rated and sent home.
14. The skin was moist and dry.
15. Occasional, constant infrequent headaches.
16. Patient was alert and unresponsive.
17. Rectal examination revealed a normal size thyroid.
18. She stated that she had been constipated for most of her life until she got a divorce.
19. I saw your patient today, who is still under our care for physical therapy.
20. Both breasts are equal and reactive to light and accommodation.
21. Examination of genitalia reveals that he is circus sized.
22. The lab test indicated abnormal lover function.
23. Skin: somewhat pale, but present.
24. The pelvic exam will be done later on the floor.
25. Large brown stool ambulating in the hall.
26. Patient has two teenage children, but no other abnormalities.
27. When she fainted, her eyes rolled around the room.
28. The patient was in his usual state of good health until his airplane ran out of fuel and crashed.
29. Between you and me, we ought to be able to get this lady pregnant.
30. She slipped on the ice and apparently her legs went in separate directions in early December.
31. Patient was seen in consultation by Dr. Smith, who felt we should sit on the abdomen and I agree.
32. The patient was to have a bowel resection. However, he took a job as a stock broker instead.
33. By the time he was admitted, his rapid heart had stopped, and he was feeling better.

forget it forget it forget it

  • Oct. 13th, 2007 at 1:15 AM
eye
there is no point in trying to talk about it.
no one in the world is ever going to get it.
ever.
no one knows what happened.
no one gets it.
everyone minimizes it.
i'm supposed to just get over it.
just forget it.
lets all pretend it never happened.
that's better, right? 



I WILL NEVER GET CLEAN.
 I HATE MY BODY!!!